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The Charitable Trust is a Tax Deductible Trust endorsed by the Australian Tax Office. Our goal is to raise funds for Sarah's therapy and equipment. 

What is Sarah’s Condition?

Sarah was born in 2007 with a rare genetic disorder. As a result, Sarah has severe hypotonia and cannot walk, speak or sit herself up. Sarah also has severe developmental disabilities in many areas, suffers from sleep apnea and epilepsy. 

Sarah has a mutation within a gene called PURA. The condition is known as PURA syndrome.

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Sarah's Story
Watch a video to learn more about Sarah.
How can you help?
Fundraising Stalls

Could you donate items for our fundraising stalls?

Donate to help sarah directly.


Help Sarah by shopping at our fundraising stalls. Lots of amazing jewellery, sporting memorabilia and gift packs available. 

Credit card and EFTPOS available.

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